TY  - CONF
AU  - Arsić, J.
AU  - Krajnović, Dušanka
AU  - Tasić, Ljiljana
AU  - Marinković, Valentina
AU  - Đorđević, J.
PY  - 2014
UR  - https://farfar.pharmacy.bg.ac.rs/handle/123456789/2112
AB  - Objectives: The lack of information and scientific knowledge of rare diseases (RDs)
and orphan drug (ODs) could affect the quality of health care delivered to patients suf-
fering from rare diseases. The aim of this study was evaluation of the level of the general
epidemiological knowledge among pharmacists regarding RDs and ODs as well as how
that knowledge is influenced by information sources, education level and years of expe-
rience. MethOds: The research design was based on a descriptive cross-sectional study.
A questionnaire previously used in a pilot KAP study in Serbiain2012 was applied. The
respondents were 182 pharmacists from public pharmacies in seven of 29 districts in
Serbia. Individual level of knowledge was assessed by total number of correct answers
from a maximum of 9, and overall knowledge was an average of the individual level of
knowledge. Results: In total, 155 pharmacists were included in the full analysis set
(response rate was 86.3%). Overall, the mean age was 43.4 years, and 94% were women.
The average number of information sources regarding RD was 1.7%, and mostly one
source out of five was used (56.1%). Pharmacists who were engaged in post-graduate
programmes or completed such programmes tended to use more sources of information
(69.2%) than those who were not involved in any such programme (41.9%). The mean
value of correct answers about pharmacists’ knowledge regarding RD and OD was 4 ±
1.77. Most pharmacists (n = 30, 19.35%) replied correctly to 6 questions. cOnclusiOns:
The results indicate that years of experience and age among pharmacists do not have
influence to the overall knowledge about RD. The positive impact of education was evi-
dently, and for the better pharmaceutical care of RD patients the training of pharmacists
to proper use of professional sources of information should be usefully.
PB  - Elsevier
C3  - Value in Health
T1  - Sources of information and pharmacists' knowledge regarding rare diseases and orphan drugs: cross-sectional study in Serbia
VL  - 17
IS  - 7
SP  - A542
EP  - A542
DO  - 10.1016/j.jval.2014.08.1747
ER  - 

@conference{
author = "Arsić, J. and Krajnović, Dušanka and Tasić, Ljiljana and Marinković, Valentina and Đorđević, J.",
year = "2014",
abstract = "Objectives: The lack of information and scientific knowledge of rare diseases (RDs)
and orphan drug (ODs) could affect the quality of health care delivered to patients suf-
fering from rare diseases. The aim of this study was evaluation of the level of the general
epidemiological knowledge among pharmacists regarding RDs and ODs as well as how
that knowledge is influenced by information sources, education level and years of expe-
rience. MethOds: The research design was based on a descriptive cross-sectional study.
A questionnaire previously used in a pilot KAP study in Serbiain2012 was applied. The
respondents were 182 pharmacists from public pharmacies in seven of 29 districts in
Serbia. Individual level of knowledge was assessed by total number of correct answers
from a maximum of 9, and overall knowledge was an average of the individual level of
knowledge. Results: In total, 155 pharmacists were included in the full analysis set
(response rate was 86.3%). Overall, the mean age was 43.4 years, and 94% were women.
The average number of information sources regarding RD was 1.7%, and mostly one
source out of five was used (56.1%). Pharmacists who were engaged in post-graduate
programmes or completed such programmes tended to use more sources of information
(69.2%) than those who were not involved in any such programme (41.9%). The mean
value of correct answers about pharmacists’ knowledge regarding RD and OD was 4 ±
1.77. Most pharmacists (n = 30, 19.35%) replied correctly to 6 questions. cOnclusiOns:
The results indicate that years of experience and age among pharmacists do not have
influence to the overall knowledge about RD. The positive impact of education was evi-
dently, and for the better pharmaceutical care of RD patients the training of pharmacists
to proper use of professional sources of information should be usefully.",
publisher = "Elsevier",
journal = "Value in Health",
title = "Sources of information and pharmacists' knowledge regarding rare diseases and orphan drugs: cross-sectional study in Serbia",
volume = "17",
number = "7",
pages = "A542-A542",
doi = "10.1016/j.jval.2014.08.1747"
}

Arsić, J., Krajnović, D., Tasić, L., Marinković, V.,& Đorđević, J.. (2014). Sources of information and pharmacists' knowledge regarding rare diseases and orphan drugs: cross-sectional study in Serbia. in Value in Health
Elsevier., 17(7), A542-A542.
https://doi.org/10.1016/j.jval.2014.08.1747

Arsić J, Krajnović D, Tasić L, Marinković V, Đorđević J. Sources of information and pharmacists' knowledge regarding rare diseases and orphan drugs: cross-sectional study in Serbia. in Value in Health. 2014;17(7):A542-A542.
doi:10.1016/j.jval.2014.08.1747 .

Arsić, J., Krajnović, Dušanka, Tasić, Ljiljana, Marinković, Valentina, Đorđević, J., "Sources of information and pharmacists' knowledge regarding rare diseases and orphan drugs: cross-sectional study in Serbia" in Value in Health, 17, no. 7 (2014):A542-A542,
https://doi.org/10.1016/j.jval.2014.08.1747 . .

TY  - CONF
AU  - Krajnović, Dušanka
AU  - Jocić, D.
AU  - Arsić, J.
AU  - Petrova, Guenka
AU  - Tadić, Ivana
AU  - Tasić, Ljiljana
AU  - Jocić-Milosavljević, B.
PY  - 2013
UR  - https://farfar.pharmacy.bg.ac.rs/handle/123456789/1846
AB  - Objectives: To assess the knowledge of health professionals about epidemiological
and national regulatory issues concerning rare diseases (RD) and access to orphan
drugs. MethOds: This paper reports some of the results from an ongoing KAP
study on rare diseases and orphan drugs in the Republic of Serbia (RS). A prospective
cross-sectional study was conducted from May to June 2013, on a convenient sample
of licensed pharmacists and physicians from two, large cities’ and its suburbies in
the central parts of RS. A specially designed KAP instrument in a form of three-part
questionnaire was applied and these results were related to the assessment of
concerning knowledge (8 multiple-choice questions) and self-assessment of the
participants (one question). Results: The study population included 214 health
workers (151 pharmacists and 63 physicians); the average age of participants was
40.80±9.45 and the average years of professional practice was 13.14 ± 9.68. Majority
of the participants (57%) knew the true prevalence of RD and slightly less than third
of the samples (26.2%) responded correctly to the question of the extent of European
population suffering from RD. There are major differences in regulatory knowledge
about access to treatment for rare diseases, as participants answered correctly in
a wide range of 21% to 67.4%. Most of the health professionals self-estimated that
possessed little (31.3%) or enough (43.5%) knowledge related to general epidemio-
logical and legislative issues concerning RD and orphan drugs. The average level of
overall knowledge assessment for all questions and self-assessmentin general was
3.53 ± 1.58 and 2.04± 0.87 respectively. cOnclusiOns: The majority of respondents
estimated that possess less knowledge on RD (general information) and drugs to
treat RD, or insufficiently. The average level of respondents’ knowledge on RD and
drugs to treat RD was below the average.
PB  - Elsevier Inc.
C3  - Value in Health
T1  - Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia
VL  - 16
IS  - 7
SP  - A478
EP  - A478
DO  - 10.1016/j.jval.2013.08.900
ER  - 

@conference{
author = "Krajnović, Dušanka and Jocić, D. and Arsić, J. and Petrova, Guenka and Tadić, Ivana and Tasić, Ljiljana and Jocić-Milosavljević, B.",
year = "2013",
abstract = "Objectives: To assess the knowledge of health professionals about epidemiological
and national regulatory issues concerning rare diseases (RD) and access to orphan
drugs. MethOds: This paper reports some of the results from an ongoing KAP
study on rare diseases and orphan drugs in the Republic of Serbia (RS). A prospective
cross-sectional study was conducted from May to June 2013, on a convenient sample
of licensed pharmacists and physicians from two, large cities’ and its suburbies in
the central parts of RS. A specially designed KAP instrument in a form of three-part
questionnaire was applied and these results were related to the assessment of
concerning knowledge (8 multiple-choice questions) and self-assessment of the
participants (one question). Results: The study population included 214 health
workers (151 pharmacists and 63 physicians); the average age of participants was
40.80±9.45 and the average years of professional practice was 13.14 ± 9.68. Majority
of the participants (57%) knew the true prevalence of RD and slightly less than third
of the samples (26.2%) responded correctly to the question of the extent of European
population suffering from RD. There are major differences in regulatory knowledge
about access to treatment for rare diseases, as participants answered correctly in
a wide range of 21% to 67.4%. Most of the health professionals self-estimated that
possessed little (31.3%) or enough (43.5%) knowledge related to general epidemio-
logical and legislative issues concerning RD and orphan drugs. The average level of
overall knowledge assessment for all questions and self-assessmentin general was
3.53 ± 1.58 and 2.04± 0.87 respectively. cOnclusiOns: The majority of respondents
estimated that possess less knowledge on RD (general information) and drugs to
treat RD, or insufficiently. The average level of respondents’ knowledge on RD and
drugs to treat RD was below the average.",
publisher = "Elsevier Inc.",
journal = "Value in Health",
title = "Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia",
volume = "16",
number = "7",
pages = "A478-A478",
doi = "10.1016/j.jval.2013.08.900"
}

Krajnović, D., Jocić, D., Arsić, J., Petrova, G., Tadić, I., Tasić, L.,& Jocić-Milosavljević, B.. (2013). Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia. in Value in Health
Elsevier Inc.., 16(7), A478-A478.
https://doi.org/10.1016/j.jval.2013.08.900

Krajnović D, Jocić D, Arsić J, Petrova G, Tadić I, Tasić L, Jocić-Milosavljević B. Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia. in Value in Health. 2013;16(7):A478-A478.
doi:10.1016/j.jval.2013.08.900 .

Krajnović, Dušanka, Jocić, D., Arsić, J., Petrova, Guenka, Tadić, Ivana, Tasić, Ljiljana, Jocić-Milosavljević, B., "Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia" in Value in Health, 16, no. 7 (2013):A478-A478,
https://doi.org/10.1016/j.jval.2013.08.900 . .