TY  - CONF
AU  - Krajnović, Dušanka
AU  - Jocić, D.
AU  - Arsić, J.
AU  - Petrova, Guenka
AU  - Tadić, Ivana
AU  - Tasić, Ljiljana
AU  - Jocić-Milosavljević, B.
PY  - 2013
UR  - https://farfar.pharmacy.bg.ac.rs/handle/123456789/1846
AB  - Objectives: To assess the knowledge of health professionals about epidemiological
and national regulatory issues concerning rare diseases (RD) and access to orphan
drugs. MethOds: This paper reports some of the results from an ongoing KAP
study on rare diseases and orphan drugs in the Republic of Serbia (RS). A prospective
cross-sectional study was conducted from May to June 2013, on a convenient sample
of licensed pharmacists and physicians from two, large cities’ and its suburbies in
the central parts of RS. A specially designed KAP instrument in a form of three-part
questionnaire was applied and these results were related to the assessment of
concerning knowledge (8 multiple-choice questions) and self-assessment of the
participants (one question). Results: The study population included 214 health
workers (151 pharmacists and 63 physicians); the average age of participants was
40.80±9.45 and the average years of professional practice was 13.14 ± 9.68. Majority
of the participants (57%) knew the true prevalence of RD and slightly less than third
of the samples (26.2%) responded correctly to the question of the extent of European
population suffering from RD. There are major differences in regulatory knowledge
about access to treatment for rare diseases, as participants answered correctly in
a wide range of 21% to 67.4%. Most of the health professionals self-estimated that
possessed little (31.3%) or enough (43.5%) knowledge related to general epidemio-
logical and legislative issues concerning RD and orphan drugs. The average level of
overall knowledge assessment for all questions and self-assessmentin general was
3.53 ± 1.58 and 2.04± 0.87 respectively. cOnclusiOns: The majority of respondents
estimated that possess less knowledge on RD (general information) and drugs to
treat RD, or insufficiently. The average level of respondents’ knowledge on RD and
drugs to treat RD was below the average.
PB  - Elsevier Inc.
C3  - Value in Health
T1  - Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia
VL  - 16
IS  - 7
SP  - A478
EP  - A478
DO  - 10.1016/j.jval.2013.08.900
ER  - 

@conference{
author = "Krajnović, Dušanka and Jocić, D. and Arsić, J. and Petrova, Guenka and Tadić, Ivana and Tasić, Ljiljana and Jocić-Milosavljević, B.",
year = "2013",
abstract = "Objectives: To assess the knowledge of health professionals about epidemiological
and national regulatory issues concerning rare diseases (RD) and access to orphan
drugs. MethOds: This paper reports some of the results from an ongoing KAP
study on rare diseases and orphan drugs in the Republic of Serbia (RS). A prospective
cross-sectional study was conducted from May to June 2013, on a convenient sample
of licensed pharmacists and physicians from two, large cities’ and its suburbies in
the central parts of RS. A specially designed KAP instrument in a form of three-part
questionnaire was applied and these results were related to the assessment of
concerning knowledge (8 multiple-choice questions) and self-assessment of the
participants (one question). Results: The study population included 214 health
workers (151 pharmacists and 63 physicians); the average age of participants was
40.80±9.45 and the average years of professional practice was 13.14 ± 9.68. Majority
of the participants (57%) knew the true prevalence of RD and slightly less than third
of the samples (26.2%) responded correctly to the question of the extent of European
population suffering from RD. There are major differences in regulatory knowledge
about access to treatment for rare diseases, as participants answered correctly in
a wide range of 21% to 67.4%. Most of the health professionals self-estimated that
possessed little (31.3%) or enough (43.5%) knowledge related to general epidemio-
logical and legislative issues concerning RD and orphan drugs. The average level of
overall knowledge assessment for all questions and self-assessmentin general was
3.53 ± 1.58 and 2.04± 0.87 respectively. cOnclusiOns: The majority of respondents
estimated that possess less knowledge on RD (general information) and drugs to
treat RD, or insufficiently. The average level of respondents’ knowledge on RD and
drugs to treat RD was below the average.",
publisher = "Elsevier Inc.",
journal = "Value in Health",
title = "Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia",
volume = "16",
number = "7",
pages = "A478-A478",
doi = "10.1016/j.jval.2013.08.900"
}

Krajnović, D., Jocić, D., Arsić, J., Petrova, G., Tadić, I., Tasić, L.,& Jocić-Milosavljević, B.. (2013). Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia. in Value in Health
Elsevier Inc.., 16(7), A478-A478.
https://doi.org/10.1016/j.jval.2013.08.900

Krajnović D, Jocić D, Arsić J, Petrova G, Tadić I, Tasić L, Jocić-Milosavljević B. Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia. in Value in Health. 2013;16(7):A478-A478.
doi:10.1016/j.jval.2013.08.900 .

Krajnović, Dušanka, Jocić, D., Arsić, J., Petrova, Guenka, Tadić, Ivana, Tasić, Ljiljana, Jocić-Milosavljević, B., "Regulatory and general epidemiological knowledge about rare diseases and access to treatment for rare diseases: health professionals' view in Serbia" in Value in Health, 16, no. 7 (2013):A478-A478,
https://doi.org/10.1016/j.jval.2013.08.900 . .